Thanks to everyone who was involved and/or supported Fragile XPA throughout July.
We managed to raise $2,431 from both the raffle ticket sales at the launch and $1 from every Fragile XPA (631) sold throughout the month 🍻
Huge thank you again to @7thdaybrewery for your support with this awareness and fund raising campaign, @tunedin_musictherapy for their live performance at the launch and Spud @convict.cc for putting together this awesome video of the launch night 🥳
This is our youngest child Gus who was diagnosed with Fragile X Syndrome at 18 months of age.
Like Most people we had never heard of Fragile X before his diagnosis and had no idea what that meant for him and our family moving forward.
Luckily the Fragile X Association of Australia were there to help us with our new journey as a Fragile X family, providing counselling and support to us and our extended family. They assisted us with accessing services and getting Gus started on his early intervention sessions to help him live the fullest life possible.
July is Fragile X Awareness month and we would love to see you down at @7thdaybrewery for the Fragile XPA 🍻 Launch tomorrow night to help raise awareness and funds for the Association 👍🏻
See you there!
Very excited to have Kane Muir playing at Inner West Breweries on the Beaches this Saturday The Racquet Club
Only 21 🎟 left, grab yours today via https://www.trybooking.com/BAWXZ
Kane Muir plays a “one man blues band” show that blends Rock, Blues, Jazz & Folk.
A guitar player in his own right, Kanes unique fingerpicking style allows him to maintain a bass line whilst playing the chords & melody. His feet play percussion all while he sings with harmonica & trumpet on top.