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GO GOLD LIVE Childhood cancer awareness gig organised by a special little girl kaiann who's fighting the biggest
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Today is the 1st of September,this is the start of childhood cancer awareness month,Will you add a childhood cancer awar...
01/09/2022

Today is the 1st of September,this is the start of childhood cancer awareness month,
Will you add a childhood cancer awareness frame to your profile picture for the full month of September?
It is very easy to do,click on to your profile picture and click add frame and choose which one you like to add.
This will help us raise awareness on childhood cancer.
Children do get cancer too it is NOT rare like they lead you to believe.
Please help by sharing post's and adding a frame to your profile picture.

17/03/2022

All SOLD
I have 10 tickets for hairspray the musical for Saturday 2nd April at 7.30pm in glasgow Kings theatre,they are in the grand circle so great seats (£56 seat)
These have been given to me by the theatre to make money for the children's cancer charities I am raising in aid of GO GOLD LIVE
If anyone is interested message me £25 per ticket saving alot and helping raise for amazing charities.

Hairspray is back on tour from July 2024, directed by and ✨🩷

Today is World cancer day,most people have been affected by cancer one way or another.Please pray for and support the on...
04/02/2022

Today is World cancer day,most people have been affected by cancer one way or another.
Please pray for and support the one's fighting, honour the survivors And always remember the taken.
💛🎗

Can everyone please sign and share to help childhood cancer research, not enough funding is being used for this help by ...
28/09/2021

Can everyone please sign and share to help childhood cancer research, not enough funding is being used for this help by signing and sharing

The Government & Parliament must ensure more research funding in the UK is dedicated to childhood cancer research, which currently makes up only 2-3% of cancer research funding in the UK. We need investment into new treatments, to replace outdated & harmful drugs that have not changed in decades.

https://chng.it/wTpNMkmJNXPlease can everyone sign and share to help childhood cancer 🎗
22/09/2021

https://chng.it/wTpNMkmJNX

Please can everyone sign and share to help childhood cancer 🎗

We need more than 3% of funding to go towards research and curing childhood cancer!

💔The reality of childhood cancer,My heart breaks reading this,you feel pain for every family who have to endure this lif...
09/09/2021

💔
The reality of childhood cancer,
My heart breaks reading this,you feel pain for every family who have to endure this life.
Change has to happen.
Such and incredible mum for speaking out while enduring so much heartache

Sophie is mainly sleeping now. She fell asleep about 5.30pm last night and woke at midnight in pain and her bowels deciding they would cause problems by continually opening. Once cleaned up Sophie would go straight back to sleep. In order just to roll on her side she's needing extra morphine before she can move. This happened a few times during the night. Sophie slept until 3.30pm today and still felt tired. She was asleep again just before 8pm.

Gareth and the girls arrived by 4pm and stayed for a couple of hours. It was nice that Sophie was awake for their time here although she wasn't very talkative.

The doctors have decided to start Sophie on midazolam to ease her anxiety and to try and make her more comfortable when sleeping as she keeps jolting. Sophie keeps feeling like she can't breathe because her tummy is so swollen it's worrying her. It's awful to see her screaming out 'I can't breathe'.

I won't give anymore graphic detail of what I've had to witness but it makes me so damn angry and upset we're in this situation. I've been sat holding her hand, stroking her hair or tummy watching her sleep thinking of all the things Sophie wants changed but also things I'm determined to change. It's going to be what keeps me going after Sophie dies.

The things we want to changed are :
1. Play specialist 7 days a week in all hospitals including making sure when someone is on leave it's covered. For Sophie having a play specialist is as important as having a nurse. Sophie has said 'children want to play or having something to do in hospital 7 days a week not just Monday to Friday. When they go on holiday it needs to be covered in the same way you wouldn't run a ward without nurses.

2. Improvements to food on children's wards. Along with feeding the parent that is staying over. This is again something Sophie is so passionate about and we're actually making some changes to. I'll update soon about this.

3. I want to lobby for a change in law so that charities cannot use images to get people to donate when they don't use the money for that use. My example is Cancer Research UK which uses 40-50% of their images include children with cancer yet only fund 3% into childhood cancer. I feel this is misleading to those who donate and it shouldn't be allowed. If they decide to only donate 3% of their funds then their advertising should reflect it. Charities should be much more open about how money is spent so that the person donating can know where there money is ACTUALLY going.

4. More funding to find new innovative treatments for childhood cancers need to be found. Giving children chemo and radiotherapy gives them lifelong health problems as a result of their treatment. Those children like Sophie go through all the treatment to still succumb to this awful disease. New treatment must be found. No parent should be in my position, it's living hell.

5. More training for GPs and front line health professionals to identify childhood cancer earlier. By the time children are diagnosed they're often stage 3 or 4 due to the battle to get GPs or other health professionals to even consider cancer as a possibility mainly as its deemed as rare (1900 children diagnosed in the UK every year). I feel regular training should be mandatory to retain their registration to practice. Early diagnosis saves lives.

I'm sure I will think of more things but this will be Sophie's legacy. She's done everything asked of her to fight this evil cancer, she never lost the battle or was weak. The ones that lost it were those that if they invested more into children could've given her another treatment option or a new treatment which is more effective.

You'll hear that advances in treatment fur cancer have improved outcomes but this is not for all. Cancers such as DIPG ( a type of brain tumour mainly found in children) have a 0% survival and you'll be told to go home and make memories. That hasn't changed in the last 60 years.
Sophie's cancer - rhabdomyosarcoma has hardly changed the outcomes of survival (ours was less than 50% survival for stage 3 fusion negative anaplastic rhabdomyosarcoma).

So I've sat and promised Sophie that I will do everything I can so that no other child or family has to endure this horrific end to an innocent child's life. This is Sophie's legacy and she won't have gone through this gruelling and painful treatment and end for nothing.

Know the signs it could save your child's life.Most doctor's dismiss these and diagnosis takes longer,late diagnosis lea...
01/09/2021

Know the signs it could save your child's life.
Most doctor's dismiss these and diagnosis takes longer,
late diagnosis leads to more pain and sadly can lead to a poor outcome.

Did you know that most parent's go to their doctor and hospital numerous time's being fobbed off before something is done?

Educate yourself,fight for your child ,be your child's voice,don't be scared to speak up,
never give in when you know something is not right,
do not be fobbed off.

Doctor's and a&e need more training in the signs and symptoms of childhood cancer this is a fact!

Tomorrow is the 1st of September,this is the start of childhood cancer awareness month,Will you add a childhood cancer a...
31/08/2021

Tomorrow is the 1st of September,this is the start of childhood cancer awareness month,
Will you add a childhood cancer awareness frame to your profile picture for the full month of September?
It's very easy to do,click on to your profile picture and click add frame and choose which one you like to add,this will help us raise awareness on this cancer.
Children do get cancer too and it is not rare like they lead you to believe,
please help by sharing post's and adding a frame to your profile picture for 1 month.

30/08/2021

September is Childhood Cancer Awareness Month🎗.
I’d like my first point of awareness to be that Cancer Research UK 2020/2021 spent the most they ever have on childhood cancer research, the grand amount totalled to only 3% of their overall funds raised. 3%.
That's 13m out of 412m
Our children deserve better than this!
🎗

Well I've decided I'm going to give this a bash again and go for the 2 climbs in the day🤦‍♀️better get my butt in gear a...
25/08/2021

Well I've decided I'm going to give this a bash again and go for the 2 climbs in the day🤦‍♀️better get my butt in gear and train since I've been a lazy sod for month's.
Wish me luck because I'll need it.
All for

Still have teams left for the ball,It is now Needing pumped up as it's been that lying that long due to lockdown.
25/08/2021

Still have teams left for the ball,
It is now Needing pumped up as it's been that lying that long due to lockdown.

25/08/2021
Everyone knows what the pink ribbon stands  for but do you know what the gold ribbon stands for?Childhood cancer awarene...
25/08/2021

Everyone knows what the pink ribbon stands for but do you know what the gold ribbon stands for?
Childhood cancer awareness month is next month September, please help by sharing post's and information on Childhood cancer,
Our children are our future and it's vital we can do all we can to help 🎗

25/08/2021

🎗

Did you know September is childhood cancer awareness month? Will you go gold ?Help us by spreading awareness, share post...
16/08/2021

Did you know September is childhood cancer awareness month? Will you go gold ?
Help us by spreading awareness, share posts, share picture's, turn Facebook gold,add a gold ribbon to your profile picture change your frame for the month of September, stand with us to show the world childhood cancer is NOT RARE it needs more awareness and better treatments.
Doctor's need educated on the signs and symptoms for a quicker diagnosis.
We need your help.🎗
Invite friend's to like our page

02/07/2021

With the event now postponed until next year,we are adding a few more charities on to raise in aid of.
As everyone knows the event's main purpose is to raise awareness on childhood cancer and to show the world it is NOT rare like they say.
While doing this we wanted to give a little back to charities.
When a child is diagnosed with cancer they spend most of their time in hospital,they can't go abroad on holiday's and any holidays near home have to be planned and near a hospital,any spikes is an automatic 48hr stay in hospital on antibiotics, but we all know that 48hr stay usually turns into more.
No holiday's abroad for our families is upto 4 years.
These fantastic charities help families in this situation to get a break away from hospital life.

We are raising for Logan's Fund who have a beautiful caravan looking onto the beach in Lossiemouth

John O’Byrne Foundation who has a new caravan in saltcoats

Cclasp Cclasp Support Group for Families who organise short holiday stays

Les Hoey MBE DreamMaker Foundation SCIO who have two lovely caravans in Craig Tara

Calums Cabin who have a few beautiful accommodations in bute and also flats in Glasgow for families who stay far away and have to stay away from home while their child is in hospital.

Whiteleys Retreat have two beautiful cottages near Ayr on a farm retreat with amazing views.

Abbie's Sparkle Foundation have a lovely lodge near aviemore on a caravan site.

Ripple Retreat, loch Venachar It's Good 2 Give! Have a beautiful glass lodge near Callander looking onto the mountains and water.

We have added the other 3 charities on because they are wonderful for all families going through a cancer journey.
(Whiteleys and John O’Byrne also offer to other families with different illnesses)
There is so much more wonderful charities and we would love to add them all,but we will stick to what we have said and after the main event takes place next year, we will continue to raise for a different charity every few month's.

Gutted to be writing this again but due to covid the Go Gold Live event in the famous Glasgow Barrowlands has been postp...
21/06/2021

Gutted to be writing this again but due to covid the Go Gold Live event in the famous Glasgow Barrowlands has been postponed again 😔
The health of other's comes first and it's just not safe enough at the moment with all the uncertainty around the virus, be assured the event will be going ahead in 2022 we are waiting on a new date to be confirmed by the barrowlands.
Hopefully by 2022 thing's will have settled and we can all be back to normality.
We haven't been able to fund raise this year due to the situation,but we are still looking for all the help we can get to make this a very big success for when we can finally have it.🎗
https://www.justgiving.com/crowdfunding/sharon-mcallister-1?utm_term=RgD4vdVB7

03/05/2021

What a wonderful day, this amazing little warrior kaiann who has organised the go gold live event took her last ever chemo today and on her 11th birthday 🎉🥳🎊
Thank you to every member of staff at Glasgow sick kids who helped kaiann along her very hard journey, nearly 2 half years fighting and she's done it 💪
We met some wonderful people along the way and will never forget anyone's kindness.
💪🎊🥳🎉🎗️

Can I ask everyone to pray for this beautiful baby girl. Reading the comments under this news report today is just horri...
14/04/2021

Can I ask everyone to pray for this beautiful baby girl.
Reading the comments under this news report today is just horrible, people arguing over her parent's sharing her journey, why shouldn't they, its their baby girl, this is the reality of childhood cancer, this is what people don't see but should, if this helps the parent's by sharing then this is upto them.
Don't judge if you have never been in this situation.
Yes it's heartbreaking to see a little baby like this but this is sadly the reality of childhood cancer,that the families have to endure.
Be kind and pray no negativity needed, just lot's of love and support 💛

Absalutley amazing news for little caleb and his family 💛 keep fighting little man 💪
06/04/2021

Absalutley amazing news for little caleb and his family 💛 keep fighting little man 💪

****NEWS JUST IN****
We were called this afternoon and given Calebs recent scan results and we are pleased to say he is STABLE no new growth and just the one spot which remains the same,to say we are delighted would be an understatement our little hero fights another day.
Hopefully this will keep us going to his next scan in roughly 8wks.
Ironically after receiving the call we took another call from the lovely people at CHAS Robins House asking how we where getting on though appreciated its also a stark reminder that Caleb is still under pallative care despite his great news but we remain positive, and take the news we got today as positively as we can as we remain hopefully for Calebs future.
Thank you once again for your continued support and prayers we truly believe they help us get through another day💪💛💙
Picture is of Calebs new post lockdown haircut this week what a difference it makes 😊

Help us by raising awareness on childhood cancer, our children are our future 💛🎗️
15/02/2021

Help us by raising awareness on childhood cancer, our children are our future 💛🎗️

Cancer is the word we all fear.The hushed whispers,The gaze that’s never met.It’s rubbing your child’s legs at midnight,...
12/02/2021

Cancer is the word we all fear.
The hushed whispers,
The gaze that’s never met.
It’s rubbing your child’s legs at midnight,
Because the chemo makes them hurt.
It’s watching your baby so scared and confused, making them take all their meds and telling them it’s all for the best.
It's lying in a hospital bed with your child scared it will be the last time you hold them.
It's listening to the beeping machine that keeps you up all night.
It's sitting in a hospital chair with very little to no sleep, scared of what will come next.
It's walking about the hospital corridors in a daze, feeling empty and lost.
It’s holding the sick bowl because they’ve not stopped being sick for hours.
It's month's of hospital stays away from your family and other children.
It’s pouring poison into the veins of your beautiful baby,
Watching them bloat from steroids, or turn into skeletons from infections and aggressive treatment.
It’s handing your child over to strangers, so they can operate on them.
It’s holding your child down for painful tests and procedures listening to their screams.
It’s comforting them, and telling them, everything will be OK.
It’s crying in the shower, because you have to be strong and not let them see you weak.
It’s saying goodbye to the warriors you meet along the way, some will make it, some will not.
It’s washing your hands 50 billion times a day,
The fear of infections never far away.
It’s blood tests, and lumbers, injections, chemo, meds,
It’s MRIs, CTs, and X-rays.
It’s waiting by the phone, for the results, desperately hoping nothing has changed.
It’s watching your child sleep at night, and making memories while you can.
Even if your child is one of the lucky ones, it’s the late effects, the long-term consequences.
It’s physio, and OT, and psychiatrists, neuro, pain team, bone team.
Even when treatment is finally through, even when your child is happy and well.
Cancer will always leave a scar, deeply embedded on your heart.
In its wake it leaves disabilities, and psychological scars, PTSD and anxiety, constant fear and worry.
When your child has cancer, it changes you.
You watch your child go to hell and back,
You get so used to your child having anaesthetic that you don’t cry anymore,
You calmly hold your child still for painful tests.
You seem so strong.
But I see you.
I know inside, behind that strong exterior, that mask you put on for all the world.
I know you’re slowly breaking, you’re trying hard not to show it, but I see it.
I know because my child’s a warrior too.💛🎗️

Word's from a cancer mom with our own added on 💛

💛🎗️
04/02/2021

💛🎗️

For anyone who has followed this little legend's story, caleb and his family got some great news today, no new growth 😁❤...
25/01/2021

For anyone who has followed this little legend's story, caleb and his family got some great news today, no new growth 😁❤️
Over the moon.
Such a wonderful family and a true little warrior is caleb 💪💪

Scan results are in we recieved a call this afternoon.
Caleb has shown NO NEW GROWTH 😃 elated doesn't cover how we feel especially since this scan is the equivalent to the time spell first time round when he relapsed so this scan was so important.
The doctor said there was a white area in his scan over his ear that would indicate an issue but will be down to his recent meningitis but having recently been to ENT they discussed at meeting and was advised to keep close watch on it,as with having radiotherapy in the area Caleb may become prone to infection so we need to ensure any pain in the ear that we bring to doctors attention straight away.
Overall it was good news and its looking like his trial chemo drug is responding at moment.
Lets hope this positivity continues 🙏
Now to plan our celebrations for our trios 5th birthday on Wednesday 🎈🎁🎂
Picture of Caleb and his soup which he was enjoying when I got the call and broke the news to him 😃
Thank you to everyone whom continues to send their support and best wishes it means the world to us.

Fly high beautiful girl, another beautiful warrior taken far too soon from our ward 💔Heart breaks for all the family at ...
27/11/2020

Fly high beautiful girl, another beautiful warrior taken far too soon from our ward 💔
Heart breaks for all the family at this devestating time 😔

It is with great sadness to let you all know that our beautiful Govan fair queen Sophia passed away yesterday peacefully at home surrounded by her family
She had a crazy spirit and a smile that lit up the room and will be sorely missed
In her memory we are asking if you can light a candle from 5-7pm tonight for the next week, outside your door or by the window, let’s light up Govan and send our loving thoughts to sophias family at this time 💖

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