
06/02/2025
Rare Disease Day is February 28th!
This is my second year creating something special for this company’s event, but it meant much more to me this year. You may have noticed that we have been quiet on social media recently. Although we’ve still been busy making our client’s events extra special, our family has been going through a very difficult time.
In December, my 3 year old daughter was diagnosed with PANS/PANDAS. This disorder is considered to be rare, however, the message that needs to be spread is that it is actually not rare.. it is rarely diagnosed. We were faced with a lot of difficulties finding the right doctors and treament for her.. and it has been incredibly hard. We are hopeful that she is on the right track now, but the message I want to send is to trust your instincts and advocate for yourself and your loved ones. 💕💜💚💙