26/09/2020
Got my blue ribbon on.
Today is Ataxia awareness day. π
I was diagnosed at 16 with Spinocerebellar Ataxia 2. Both my grandfather and father have SCA 2. Only one parent has to have it to have a 50% chance of passing it on. The genes for this were discovered the year I was born. Ataxia is so rare that it doesn't get the exposure to bring awareness.There is no cure.They are of course working on all of that. My eyes move back and forth so fast sometimes that I have to move my head to see. My muscles lock up and I have to wait for them to work again. I have difficulty walking, I look drunk. I can't list everything Ataxians and I go through.This is a progressive disease. It goes as slow or fast as it wants. Ataxia affects voluntary functions first. They start to fail. And then it affects the involuntary functions. Breathing. There needs to be more awareness. Without it, the donations needed for research is not enough.
If you would like to know more, check out National Ataxia Foundation. And search YouTube. There are a lot of videos to watch.
I would like to spread through my story.