Events4Research

02/04/2024

I may have been scanned - please be careful

22/08/2021

Recovering from a fantastic day yesterday with 26 friends at Zio World in Bangor, Wales.

A big shout out to Hanson Coaches, driver Wayne always on hand to help us.

The staff at Zip World very well organised and all staff were very accommodating at all times. Allowed us to make changes, add new people, helped us secretly carry Nicky’s cake in and cut it up. At every stage, I have to say they were brilliant - nothing was too much trouble.

Thanks to Michelle Ramsey for allowing us to park the cars there all day and entertaining us on our return.

Massive thanks to all the Zippers for joining Debbie Wall and myself in Zip4Resewrch, our charities have suffered during the last 18 month and every penny counts! Research is key to finding new breakthroughs with the ultimate goal A CURE!

There is still time to help fund new research, if you can find some spare change please donate

https://uk.virginmoneygiving.com/Events4Research

19/08/2021

18/08/2021

https://uk.virginmoneygiving.com/Events4Research

Not long to go til 30 of us zipline down Velocity 2 in Snowden. We originally were going in April 2020 so 3rd attempt it looks like we have got the green light. My biggest thanks to all of you who have sponsored myself or the others , our two charities are very grateful. If, however, you find some change down the back of sofa……………………,,

16/08/2021

Counting the days, praying for good weather !

30/07/2021

Finally

Help Debbie change the world! Make a donation now

13/07/2021

Please have a go, help this very worthy charity to keep funding vital eye research and new breakthroughs towards finding a cure for many eye conditions.

Play our weekly lottery now

31/01/2021

Hi all hope you are all keeping well . After chatting with Debs we think it would be best to move Zip4Research to a later date. Hope you all agree? Thinking about mid-late August if there are any spaces at Zipworld. Will keep ypu posted . Keep safe all

12/12/2020

Hi all hope you are all keeping well
We both wish you all Merry Christmas
This morning We have rebooked our coach
Zip 4 Research soon be here for us

Keeping positive it’ll go ahead
Our charities really need it to
Let’s all group together in new year
And try to raise loads more money too

10/11/2020

Finally we have some good news
And we know it is early days
But hopefully we can now plan
For Santa and his many sleighs

Seriously we can also start
Promoting our Zipwire event
Our charities need all our help
They’re really struggling at present

Research is the key as we’ve seen
We could all help find a new cure
The hopeful news is a great start
And inspiring us all i’m sure

10/07/2020

On countdown to April when hopefully travel and groups restrictions will Have eased a lot more @.!, Fight for SightHuntington's Disease Association

22/06/2020

Don’t forget to email [email protected] to register for

Help Debbie White raise money to support Fight for Sight

25/04/2020

Hi all you zippers and supporters such a shame our plans have changed today but we must keep positive. Our two charities like many others, need our support more than ever so it would be great if you could all join in the 2.6 challenge. We could all use our virgin money links for the Zipwire. It would be fabulous if we could post 26 of you doing your challenges over this next week. There are a few ideas below . Stay safe everyone ###

1. 26 laps around your garden.
2. A quiz with 26 questions.
3. Run 2.6 KM.
4. Baking 26 baked goods.
5. Stream a 26 minute class in your special skill.
6. Do 26 drawings of your friends and family as gifts.
7. Do 26 Press ups/squats- whatever your favourite workout is. Do you have children that could try to join in?
8. Record 26 lovely messages of lockdown encouragement for your supporters.
9. Cycle 2.6KMs or 26 miles over the course of a week?
10. Learn 26 words/phrases in another language and record yourself showing off your new skill!
11. Learn 26 new dance moves.
12. Write a recipe book with 26 of your favourite recipes.
13. Challenge your family or friends to take it in turns to say 26 plant names or capital cities as quickly as you can (the subject choices are endless).
14. Take a 26 minute class online.
15. Hop on one leg 26 times
16. Take 26 photos that inspire you and share with supporters.
17. Hula hoops for 26 minutes.
18. Give up something you love for 26 days starting on the 26 April marathon day eg chocolate, wine, biscuits.
19. Host a board game challenge online- can you complete a game in 26 minutes?
20. Do 26 keepy uppys in a row.
21. Learn 26 new yoga moves.
22. Do a zoom bingo with 26 squares.
23. Climb your staircase 26 times.
24. Do 26 pancake flips in a row.
25. Host a 26 item treasure hunt on zoom- challenge your friends to find the items in their homes. Who can be the fastest.
26. Ultra-challenge! Do 26 hours of an activity in relay with your housemates/family! 26hours of yoga? Painting? Knitting? Whatever you love doing!

03/04/2020

Did anyone see the great views on Walking Britain’s lost Railways? See what we are all missing in a few weeks x

29/03/2020

Morning all hope you are keeping safe x
These are strange times we’re having to face
Zipworld will wait to hear our new date
Can’t make plans yet but we have some grace
Others that couldn’t join us before
Do now have a chance to book their place
We can all help make a difference
Fight for Sight & HD in the case

29/02/2020

Another reason for our fundraiser

28/02/2020

Another reason to raise awareness in

23/02/2020

Here, we hear from guest author, Harriet Jenkins, as she discusses her partner’s positive Huntington’s test result, how he handles day to day life knowing he will develop the disease and how they stay positive.

21/02/2020

Not long now ................ listen put cov and warks radio new breakfast show u may just recognise some voices x

21/02/2020

Welcome aboard Zoe Ireland ###. You are booked in with our Jane Smith at 1.20pm

16/02/2020

We need urgent action on blindness to help create a world that all children can see.

Add your voice to the growing movement of supporters who want to see an end to sight loss and we'll keep you updated on the latest breakthroughs and opportunities to make a difference https://www.fightforsight.org.uk/jointhefight/

16/02/2020

If you are a physiotherapist working with someone affected by , you may find the European Huntington Association's Physiotherapy Clinical Guidelines useful. The document discusses topics from exercise capacity and performance to alignment in sitting and respiratory control. Take a look at the helpful guide here - http://bit.ly/3bs8JoB

15/02/2020

70 days time this will be us "................

05/02/2020

We now have some charity t-shirts and would like to get some more photos to add to the album . We did a few quick ones to start the ball rolling. We can circulate them round to you to add yours too x. But for some reason I can’t upload them ! Will try another way!

02/02/2020

Brilliant

02/02/2020

https://twitter.com/drlihueitsai/status/1222913743706705921?s=21 brilliant!

“Amazing work in by Myriam Heiman’s lab ! Her team created a genome-wide genetic screen in the mouse brain and identified new targets for Huntington’s disease. https://t.co/f2OnMQZepI ”

27/01/2020

My mother-in-law, Edwina, visited us right before Christmas. I'm proud to say that I'm her favorite son-in-law. (That's a family joke. I'm her only son-in-law.) Her husband, Ken, died from Huntington's disease in 2011. During her visit, I asked her what it's like to be a caregiver for someone...

27/01/2020

The days are flying by excuse the pun!!!

We may get to 39 of us and maybe even a surprise guest!

Can all of you who haven't yet set up your VMG pages please do so asap and link them to the group hub.. We can all inspire others and hopefully see some much needed research money come in whilst watching the group hub total SOAR oops there i fo again........

I have many paper sponsor forms should any of you need those too - these totals can be added as an offline figure (this can also be altered periodically_ this way we can maintain interest from the public watching the event total

As i said in the group message, a coach has been booked and there is room for spectators as well at the moment. I will confirm times and location nearer the time.

Through my Volunteer of the Award ceremony contacts, we also have a PR company helping us to raise awareness and sponsorship so please help by sharing these posts etc

Thank you once again everyone for your support

Zip a doo dee dah

Debs
x

25/01/2020

https://twitter.com/hda_tweeting/status/1218173880084373504?s=21

“Patience is a virtue? Here, Carlos gives tips on how he practises in everyday life to prepare for his wife's progressing symptoms. Learn techniques for practising patience & how to overcome frustration - https://t.co/WtqhmVhFL9 ”