Wedding 💒 & Event staff required
Wedding 💒 & Event staff required
💫WINNER💫 Thank you all for entering our competition to win a €200 voucher for catering I am delighted to say we raised €955 for the @downsyndromecentre which is incredible👏. Harry had the task of picking the winner and we’ve emailed them directly. Congratulations💛
Big Steps
If their was ever a proud moment.. Freddie has come a long long way, a huge focus is put on his physio at the moment. But today Freddie went on his longest walk ever. My house to the playground, took a LONG time. But we made it. @empower_movement_clinic @enable.ireland
Day 12 of 31 #downsyndromeawarenessmonth Down syndrome and siblings
Day 12 of 31
#downsyndromeawarenessmonth
Down syndrome and siblings
When new parents find out their child has been diagnosed with Down syndrome, one of the immediate concerns is how this will affect their other children, as well as their family dynamic.
Surveys conducted among siblings of individuals with DS found that 96 percent of siblings reported they had affection toward their sibling with DS, and 94 percent of siblings expressed that they were proud of their sibling with DS. Among older children, 88 percent felt they were better people because of their sibling with DS.
Siblings also reported that having a sibling with DS enhanced their perspective on life and made them more patient and understanding of differences.
Parents of individuals with Down syndrome were given similar surveys, and the results were overwhelmingly positive. Seventy-nine percent felt their outlook on life was more positive because of their child with DS, and many felt that having a child with DS has contributed to their personal growth. They also reported becoming more patient, accepting and loving as a result of having a child with DS.
We are obviously only very early on in this journey but myself and Tracy can say, without doubt, that we are better people for now being parents to a child with additional needs. It has taught us a new level of patience and empathy.
We can also see in Freddie’s siblings the love & patience they have for him is remarkable. At the moment we are working with Freddie on walking and harry (5) tells him every day as we practice (without prompt!) “I believe in you Freddie”😭
We know they will be his biggest cheerleaders as they grow up❤️
Day 11 of 31
#downsyndromeawarenessmonth
Down Syndrome and Làmh
Lámh is a manual sign system used by children and adults with intellectual disability and communication needs in Ireland. Lámh is a type of augmentative or alternative communication system (AAC).
Most children born with Down syndrome will have a speech delay and use làmh as a form of communication with their caregivers and peers.
It is important when using làmh to say the word as you are using the sign so the individual makes the connection and will use the word for the sign if & when they progress to that stage.
Myself, Tracy and both our mums have completed a làmh course and we use this with Freddie in our everyday life.
We are lucky that Freddie has a few words but he has recently started signing back to us a couple of words he doesn’t have.
Freddie has the sign for “mama” which Tracy loves as the two other boys first word was dada🤣
Our other two boys are OBSESSED with their grandad and all three have a very special relationship with him so it was no surprise the second sign Freddie mastered was “grandad” and when he sees grandads car pull up outside the grandad sign goes manic🤣
The Ultimate Machine is coming out of its hibernation! Getting ready for a #roadshow with @backupmktg & @tescoirl
and it matches my jeep now too! 😀
Little Freddie couldn’t stay awake to do the raffle himself😴 So we did the best in his honour!❤️
Congratulations to the winners! We decided to throw in two extra winners for a €100 Kitchen28 voucher each aswell as we exceeded ALL expectations and raised €5460 all for @downsyndromeireland
Thank you all SO incredibly much💙💛