Candlelight Concert for Epilepsy Awareness

Candlelight Concert for Epilepsy Awareness An ongoing, non-profit epilepsy awareness concert series based in NJ. Created and run by Eric Miller following the passing of his wife Carolina to SUDEP.

The Candlelight Concert for Epilepsy Awareness is being sponsored and promoted in part to honor the memory of Carolina Barcelos Carneiro de Oliveira Miller. On August 22nd, 2011, Carolina, age 25, passed away tragically and suddenly as a result of epilepsy/seizure disorder. Carolina was diagnosed with epilepsy in her teenage years; she had taken medication daily and kept it mostly private, due to

the stigma too often associated with epilepsy. This fundraising effort is designed to reverse the history of stigmatization and further contribute to seeking a cause and cure for epilepsy. To read more about Carolina, please visit: http://www.candlelightconcert.org/carolina.asp

Thanks - Eric Miller

Olmstead and the ADA were milestones meant to ensure the civil and human rights of people with disabilities, and we must...
07/07/2024

Olmstead and the ADA were milestones meant to ensure the civil and human rights of people with disabilities, and we must protect them against the possibility of going backward.

A lack of investment in home- and community-based services and the low wages that result threaten to turn back the clock due to a severe national shortage of direct support professionals

11/13/2023

Manny was diagnosed with epilepsy after experiencing a seizure in the passenger seat of a car, but it wasn't new to him since his daughter has epilepsy, too. Read about how he is creating awareness and removing the stigma surrounding epilepsy: https://bit.ly/465uyFO. By sharing stories like Manny's as part of the campaign, we hope to spark conversations and inspire others to share their own experiences with living with epilepsy.

11/13/2023

My name is Tiffany Webb, and I have had absence seizures since I was 7 years old. It restricted my ability to drive, which drastically affected my life and career choices. Regardless of the obstacles, I managed to create epilepsy awareness through filmmaking (Voice of the Epilepsies) and podcasting(The Epilepsy Spectrum). Finally, at 35 I began this seizure free streak that has lasted for five years now! I am opening a business now, driving and am more independent than ever! I am so happy I never gave up! It took over 30 years, but I finally found the right doctor and medication that helps me! Don’t give up, and never lose hope!

10/28/2023

Employment Workshops (hosted by EF Connecticut): See the attached flyer for more information and please invite your local communities to attend the virtual sessions happening on 10/31, 11/13 and 11/28!

Registration is free!

10/31 - 12PM Registration Link: https://bit.ly/3OSiwKl
11/13 - 6PM Registration Link: https://bit.ly/3YCNnh6
11/28 - 4PM Registration Link: https://bit.ly/3DYnH5o

The senior offensive lineman, who attends Parkway Northwest, was a sophomore when he was diagnosed with epilepsy and mis...
10/27/2023

The senior offensive lineman, who attends Parkway Northwest, was a sophomore when he was diagnosed with epilepsy and missed a season. He recently led the Cougars to a division title.

The senior offensive lineman, who attends Parkway Northwest, was a sophomore when he was diagnosed with epilepsy and missed a season. He recently led the Cougars to a division title.

10/27/2023

We have a great list of topics being covered at the upcoming Conference! Register for this free event today and join us on November 18 at the Gail Miller Conference Center at Salt Lake Community College! You won't want to miss this event!

Register: SeizureSmartUT.givesmart.com

A report into maternal deaths in the UK and Ireland has found that 40% of people who died from a neurological condition ...
10/26/2023

A report into maternal deaths in the UK and Ireland has found that 40% of people who died from a neurological condition had epilepsy.

A report into maternal deaths in the UK and Ireland has found that 40% of people who died from a neurological condition had epilepsy

10/25/2023
10/25/2023

My name is Maggie, and I am a senior in college studying public health. I was diagnosed with epilepsy when I was 8, and I have been an advocate for individuals with epilepsy for many years now. I participate in the Purple Pumpkin project because raising awareness about epilepsy and seizure response is key.

"I wanted Johdi's death to mean something," says Tanya Russell, as she recalls the shock at losing her teenage daughter....
10/24/2023

"I wanted Johdi's death to mean something," says Tanya Russell, as she recalls the shock at losing her teenage daughter.

Johdi, who had epilepsy, was a bright 17-year-old from Somerset when she died "out of the blue" from a condition her mum "knew nothing about".

She died on 5 October 2017 from sudden unexplained death in epilepsy (SUDEP).

Since then Mrs Russell, 50, from Cheddar, who also has epilepsy, has campaigned to change processes in hospitals and GP surgeries to make sure families with children with epilepsy are informed about SUDEP.

Tanya Russell lost her 17-year-old daughter Johdi to SUDEP and is campaigning to raise awareness.

10/24/2023
10/23/2023

Address

Ewing, NJ
08534

Website

http://www.cc4ea.org/

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