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08/02/2024

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I'm reaching out today on behalf of my mother, Carol, who is facing a challenging time following the sudden loss of my f...
03/29/2024

I'm reaching out today on behalf of my mother, Carol, who is facing a challenging time following the sudden loss of my father, Harold “Robby” Robinson Dowdy. We are currently seeking financial assistance to cover the costs of his funeral and cremation services, as well as an autopsy to understand the cause of his sudden passing. Additionally, my mother will need support to cover her living expenses until she can transition her Social Security benefits. Your generosity during this difficult time would mean the world to us. Please consider donating and sharing this fundraiser to help us reach our goal. Thank you for your kindness and support. Here is the link to the obituary:

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Skip to main contentPetition detailsCommentsRecognize Functional Neurological and Movement Disorder as a Physical Disabi...
03/19/2024

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Petition details
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Recognize Functional Neurological and Movement Disorder as a Physical Disability
Started
13 March 2024
Signatures: 51Next Goal: 100
51
100
Signatures
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51 people signed this week
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Why this petition matters

Started by
Rebekah Illingworth
In 2019, I suffered a severe concussion due to an unfortunate incident. This was not an isolated event; I experienced multiple falls and subsequent concussions over three years. One particular instance left me in a blackout with no memory of the incident. For over a year, I was dependent on crutches until I managed to self-rehabilitate and walk without aids again. In 2022 I was told I have FND and will receive but instead was left in a limbo resulting in me having a seizure which caused a fall in the shower causing me days later needing crutches. Without the help of ACC I got worse and ended up on walker, requiring a commode eventually due to heavy weakness and then finally ended up wheelchair bound as my feet suddenly didn't move. I was told more tests won't be good for me.
I go through seizures, involuntary movements, pain and heavy fatigue as well with FND. There's a whole lot of symptoms for people with FND that should be treated better not shrugged off.
I was put through a lot of grief and stress resulting in my Autistic Spectrum Disorder heightening which resulted with me feeling mentally unwell. I was told my subconscious is causing this and to mainly see a psychologist. My perspective was being told over and over " It's all in my head I need to be positive at all times to walk again". I strongly disagree with this. It is a physical disability and a neurological condition that unfortunately relapses in some.
Luckily I have a physio now but I had to do it myself no one assisted me because it isn't recognized. I believe alot of people out there don't even know it exists too.
I have underlying conditions and so do others it is not all FND related also..
During this challenging period, instead of receiving the necessary support from ACC (Accident Compensation Corporation), my condition was dismissed by a specialist who labeled it as "mental". This is the harsh reality faced by many individuals diagnosed with Functional Neurological and Movement Disorder (FNMD). Despite its debilitating impact on our lives, FNMD is often misunderstood or misdiagnosed.

FNMD is not 'all in our heads'. It's not merely mental but rather a neurological physical disability that affects countless people worldwide. Yet, we are denied funding and fair treatment due to this misunderstanding.

It's high time we change this narrative. We demand that FNMD be recognized for what it truly is - a neurological physical disability - so that those affected can receive appropriate funding and treatment without prejudice or dismissal.

Let us stand together against this injustice! Sign our petition today to bring about much-needed change for all those living with Functional Neurological and Movement Disorder!
I don't want anyone who could be newly diagnosed to go through the stresses and odded out ever again
51 people signed this week
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Recognize Functional Neurological and Movement Disorder as a Physical Disability

03/04/2024

Many of you know we had an eventful week last week…some celebrating the wedding of my beautiful daughter Skylar Gnagey and wonderful new son-in-law Tyler McSnipehunting Gnagey and some mourning and shock over the loss of my step dad, Harold (Robby) Robinson Dowdy and the turn out of my court situation with custody of my youngest precious little girl.

I ask that you keep our family in your thoughts and prayers and be patient on information for the celebration of life/memorial service. Scott N Heather Fuller, Ashlee Anderson Malone, and I are taking care of mom Carol Beer along with the support of all our children and working through all the necessary arrangements.

I couldn’t be more blessed to have a supportive family as I have and couldn’t have been more blessed to have a step father with no children accept us all even through turmoil, excitement, laughter, vacations, the good, the bad, and the ugly as Robby has given us all over the last several decades. Waylon Tom, Skylar, Elle, Madalynne Baron, Avery Baron, Adler, and Amiyah, you all have been amazing and my heart is filled with so much love for you all for all your support to grandma and my heart aches for your loss as well. Mimi is here for all of you for each of you are like my own kids just as my sisters accept you all as their kids.

Cry when you need to, don’t feel guilty for laughing because Hey-Hey would want you all to laugh! Friends and community of Fort Myers that knew and loved Robby, my prayers for you as well during this time of loss.

And Brian Baron, thank you so much for all your love and support and all you’ve done all week. I know you lost your best friend and have stayed strong to help our family out. And even in joking, the idea of marrying my mom touches my heart to know you want her just as taken care of as we all do.

And to my dad Steve Anderson and Carolyn, I’m blessed to have your support and love and all you’ve done. We may have had some rocky moments, but I love you with all my heart and soul! Carolyn, you have a sweet soul that has filled my life with joy and comfort since you’ve entered our lives, and daddy, I’m sorry for any time I’ve caused you pain. You are my dad and I thank you for sharing that with Robby. But you dad, have made me, and your enduring strength is something I try to achieve daily.

May God bless you all and prayers for all our strength and comfort!

02/27/2024

So the big day is coming on Saturday, which has quickly approached! My “little girl” Skylar K. Tom is marrying her hero and perfect match Tyler McSnipehunting Gnagey! I couldn’t be any more proud and excited for the two of them! Now Jo mama needs to start feeling better for all the festivities or maybe this was a blessing to be able to lose a few more pounds to fit in dress a little better 😂!

Celebrating my 1st year on Facebook as the Good Samaritan Chef! Thank you for your continuing support. I could never hav...
01/18/2024

Celebrating my 1st year on Facebook as the Good Samaritan Chef! Thank you for your continuing support. I could never have made it without you. 🙏🤗🎉

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